Comments on: 15 Diseases, disorders and syndromes that go along with Migraine

By: Debra Chesman

Debra Chesman — Sat, 01 Oct 2011 01:18:34 +0000

There are many, many symptoms that are caused by infections from Lyme Disease and other tick-borne infections such as Ehrlichia, Bartonella, Babesia, etc such as headache with sensitivity to light and sound, fibromyalgia, arthritis, anxiety, OCD-like symptoms, nightmares, abdominal pains and joint problems (that can cause lordodis changes) or TMD issues. If you have too many symptoms, maybe it’s not primary migraine. Get tested for Lyme, etc with a trained ILADS (International Lyme and Associated Disease Society doctor with tests orderd from IGeneX Lab in CA. In the meantime, if anyone suspects Lyme, do not use any steroids (it’ll make you sicker) except maybe to save your eyesight or your life until you are SURE it couldn’t possibly be Lyme. I have not yet met a neurologist who knows anything about how to diagnose Lyme, etc and we have been to many, some so-called leaders and experts in headache.

By: Shelly

Shelly — Fri, 08 Jul 2011 14:42:12 +0000

Something Martine said made me wonder if there is a connection between migraine and another condition I have. I sortof thought it was due to the curvature of my spine – hyperlordosis wikipedia calls it. My legs cramp easily in a sitting position, I sometimes get nerve pain in my legs and feet, I have poor circulation in my feet. Anybody have any information?

By: Lori

Lori — Thu, 07 Jul 2011 14:00:22 +0000

@Martine, arachnoid cysts in the posterior fossa can cause Chiari Malformations. It made me think of it because of the numbness and tingling you mention. It is diagnosed via an MRI, but get a copy of it yourself and look at it, as many Radiologists still miss them, though they are very easy to see. You can go to http://www.asap.org to learn more and see MRI’s to know what you’re looking for.

By: Lisa

Lisa — Thu, 07 Jul 2011 02:59:07 +0000

1, 2, 12, 15. Not only do I get the tingling in the legs but also my arms. I also go through bouts of insomnia as well as episodes of acting out my dreams. Many times my husband has told me how I have hit him while sleeping. I have had migraines for as long as I can remember. I have dramatically changed my diet. I read every label to avoid as much artificial ingredients and MSG as possible. At least I have managed to minimize the food related triggers. As for my preferred treatment, I do not like to medicate on a regular basis. So I opt for treating when I know the pain is starting. I will take naproxen sodium, (Aleve). If that does not work or minimize the pain, I will grab an ice pack or two and head to a quiet, dark room.

By: martine

martine — Sun, 03 Jul 2011 18:33:52 +0000

1,2.10,12 and 15 sorry I don’t have nearly all of them I just did’nt look properly. Sorry martine.

By: martine

martine — Sun, 03 Jul 2011 18:25:29 +0000

Hi, I have headaches and migraine or 16 years since I was 35. I don’t know i it is hormone related or not but it has often been triggered by periods. All I know is that i’ve had headaches and migraine nearly every day. I am on pizotifen daily and they have helped a lot I also take triptans and they help, it’s just that I can’t take too many or I’l get a rebound, I work for myself as a mobile hairdresser and so I’m lucky but I’ve lost a lot of customers because of migraine and if I’d have worked for an employer I would have been unemployable. Having 2 teenagers probably had something to do with it aswell hehe. Anyway had a cat scan and they found I have an arachnoid cyst in the posterior fossa of my brain, they they say it’s not connected but i’ve done lots of research and I don’t agree. Also I have nerve pain in my legs due to knumbness and tingling from migraines.I also have most on the list. When I’ve had a bad migraine Ifeel chronically fatigued for about 3 weeks until the next one, have to say it has ruined the last 16 years of my life. Sorry to be negative but this is my life ..AAAAAGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGG

By: poppy

poppy — Thu, 30 Jun 2011 06:18:01 +0000

I have suffered with migraines since puberty and there is a family history of migraines. My migraines became worse and more frequent following a medical procedure called a CT myelogram following a lumbar puncture. The CT myelogram discovered I had a Tarlov cyst located in my lower spine. When the spinal fluid was removed during the lumbar puncture and then the dye was injected for the CT myelogram, it created an imbalance in the spinal fluid pressure which lead to a spinal headache. Since this procedure in 2003, my migraines have become more painful, more frequent, and more difficult to treat. Take care when invasive diagnostic procedures for the spine/brain are performed. The CT- myelogram was for severe radiating low back pain and the lumbar puncture to rule out Multiple Scoliosis. In the last 2 years, my migraines have changed. I now have vertigo, severe right eye pain, balance problems, and increased numbness and tingling on right side; 99% of my migraines are on the right side.

By: donna

donna — Wed, 29 Jun 2011 20:51:48 +0000

Hi Danielle,
I felt so sad to read your post and wish there were something that someone on this site could do to help. I have had migraines for a long time also but not to your extent. I have started to taking plavix, which is a blood thinner and inderal and this has been a big help. I have mentioned before on this forum a condition called hughes syndrome, maybe get tested for that and I have heard coeliacs can also sometimes cause constant migraine. I believe there is also an operation they are experimenting with at the Cleveland medical center but not sure about that. Try going to another doctor,even though I am sure you are sick of doctors it only takes one to know the right thing for you and you may not have met that one yet. I hope things improve for you.

By: Danielle

Danielle — Wed, 29 Jun 2011 17:47:39 +0000

I have suffered from migraines for 26 years and they last for months on end. When I was pregnant, I had a migraine everyday of my pregnancy. I suffer from 1,2,5,10,14,15 and the depression worsens due to constant pain. In 3 years I missed over 150 days of work, due to the depression, anxiety and the migraine pain. I am currently disabled and unable to work, I live in a blacked out bedroom and have more ice bags and gel packs then I should.No pain medicine, preventive medicine or any combination of medicines help me. My father suffered from migraines and my mom’s mom suffers with migraines, so I had 100% chance of inheriating them. Then there are the ones that hit with severe heat, thunderstorms and severe cold temps. I avoid all the “bad foods”, and have has a hysterectomy (for other reasons) which the Doctor told me should help with my migraine pain-NOT. I can not have anything with any kind of a scent in my home or around me or it triggers a migraine, flashing lights will trigger a migraine, bright lights, loud sounds; they all trigger migraines. I feel trapped in my own home, really my bedroom, because that is the only dark place where I can go. One positive note, as of June,2011 I started my 1st set of botox injections, so I have my fingers crossed that this will help.

By: Vicki Murray

Vicki Murray — Tue, 28 Jun 2011 04:17:53 +0000

Great! I have five of the conditions described in this list.