Skip to content

4 Comments

  1. ClusterHeadTom
    21 November 2013 @ 5:50 am

    I was the 2nd in Canada and at the time 17th in world to have DBS done for cluster headaches. See my blog for info
    http://www.clusterheadsurvivor.blogspot.ca
    I am chronic for over 8 years and prior to surgery nothing worked.

    Reply

  2. ClusterHeadSurvivor
    2 December 2013 @ 5:21 pm

    I just surpased 1 year makr of my deep brain stimulation. I am #2 in Canada and 17th on planet at time of surgery to have DBS for CH.
    At present 10% improvement. Some would think I was nuts to have this done for 10%…if anyone has CH they know 1% is lots!
    God Bless anyone suffering.
    see my blog for updates

    Reply

  3. John Fletcher
    26 June 2015 @ 5:39 pm

    Brilliant Tom!
    You have been and always will be a huge hero to me. So much respect and admiration at your courage, determination and bravery to endure all you have to battle this horrific disease. You inspire us all and your advocacy work is worldwide…Love you my brother, Don’t stop!…:)

    Reply

  4. ClusterHeadTom
    27 June 2015 @ 4:51 pm

    Aftern2.5 years I turned the DBS off as no relief and did magic mushrooms.
    It was the only thing that ever gave me some relief.

    Reply

Leave a Reply

Your email address will not be published. Required fields are marked *