Comments on: DHE Migraine Treatment: Why some people still use it

By: janet

janet — Sun, 25 Mar 2012 19:18:13 +0000

i have just received my first and last treatment of DHE. i am out of the hospital 7 days and feel just as awful as i did during the treatments. the side effects are not subsiding. the constant heart pounding, chest tightness, metal taste in my mouth, lower back pain and leg pain, not to mention the nausea and insomnia….i will never do this again. after suffering for 35 years with migraines…i don’t know which is worse…medication overuse….or DHE side effects…at least i could function for a day and feel somewhat normal. i can’t enjoy food because nothing tastes good…have no desire to drink fluids, so dehydration is a worry….no sleep….and weakness….i am scared.

i hope your daughter is feeling better. i wish these side effects would disappear. my son and his wife are expecting their first baby, my first grandchild, in 4 weeks. how am i going to travel across the united states to see this baby when i can’t get dressed.

By: Anne

Anne — Thu, 15 Mar 2012 02:09:59 +0000

Amy,

How are you doing now?

By: Judi

Judi — Wed, 14 Mar 2012 08:11:33 +0000

What your daughter is experiencing sounds an awful lot like whqr I’ve beef going through. I’ve been fighting migraines for years and ave taken Dhe several times

By: Amy

Amy — Mon, 06 Feb 2012 17:36:29 +0000

I am a chronic migraine patient. They started for me in 2000, at that time most Doctors would either give me demerol shot, & or Dilaudid. I have used everything from Neurontin, Toperimate, amitriptiline, & now Botox. I have had several hospital stays with DHE treatment lasting anywhere from 3 to 5 days. After using Opiods for 5 years I decided I needed to be taken off the meds, I felt as if i was getting rebound headaches from them. At that the Doctor decided to put me on Suboxone to help with chronic pain, now i believe the opiods were causing muscular pain possibly mocking Fibromyalgia. I continued on Neurontin, Toperimate, amitriptaline and the suboxone for 6 years. I finally made the decision I was never going to take any meds again. Went in the hospital received a Vivitrol shot in hopes of the inevitable withdrawal. Was the worse and hardest withdrawal, couldn’t imagine doing it without the vivitrol or ativan. If anyone has any questions feel free to email.

By: Landa Wagar

Landa Wagar — Fri, 13 Jan 2012 04:24:20 +0000

Dear Jan,
So sorry to read of your daughter’s experience. My son had a similar experience with dhe. We have a friend who had success with the diamond clinic in chicago. You might check there. I would not give her kolonopin. They don’t always mention the pediatric rage side effect.

By: donna freeman

donna freeman — Fri, 13 Jan 2012 03:05:52 +0000

excuse my ignorance but could someone tell me is DHE an injection of dhyldergot which is a pain relief for migraine

By: Anne

Anne — Fri, 13 Jan 2012 00:56:13 +0000

Jan,

Has your daughter tried Periactin? It is generally used in children for migraine. The bad side effect is weight gain, as this medication is also used to treat anorexia. Periactin is the only thing, besides large doses of prednisone, that has helped me, and I’m an adult. Don’t like the weight gain but it is the only thing that has allowed me to be more functional. I’m hoping to be able to go back to work.

By: Jan

Jan — Thu, 12 Jan 2012 19:32:30 +0000

One mored comment. My daughter is now 15 and was passing out, way more migraine attacks and CVS. After dhe treatment was having chest pains, had to wear heart monitor for one month. Still having chest pains, still sick,(worse now). Just simply put can not function..I’m very angry DHE made things way worse the second time. No child should have to live like this. Does anyone know where else to go for treatment of some kind. DESPERATE for a solution.

By: Jan

Jan — Thu, 12 Jan 2012 19:17:51 +0000

My daughter whom I spoke of before had the dhe treatment in September. She almost died due to wrong medication being given per doctors orders. Her blood pressure bottom out. 5-8 more weeks of hospital stays to get her straighten out. Episodes have increased. SHE will NEVER go through another dhe treatment. Good luck to those it does work for.

By: Anne

Anne — Tue, 10 Jan 2012 02:31:03 +0000

Someone recently told me about a procedure where blood (patient’s won) is injected into the muscles (I think) in the neck. Has anyone heard of this treatment?