Project Migraine Hope gives Migraineurs a Face and a Voice
There’s no doubt that migraine is a misunderstood disease. That means migraineurs, migraine sufferers, are themselves misunderstood – in their relationships, workplaces, and social activities. But a new website aims to give migraineurs a chance to speak.
Blogger Kelly from Fly with Hope has just launched Project Migraine Hope. Project Migraine Hope gives people who are dealing with migraine a chance to speak out and let the world know how serious migraine really is.
It’s also an opportunity for family and friends of migraineurs to share.
Kelly writes:
So many of us have been in a place with our Migraines where we have felt depressed, devastated and lost: when nothing is helping and you are lying alone in a dark room with excruciating symptoms; after another medication trial failed; when insurance did not cover a treatment; when the doctor said "I don’t know what else to do" and/or "It is all in your head"…
We need to share with each other how we hold onto hope and to talk about what keeps us going amidst the struggle during dark times.
There IS hope for the area of more funding for Migraine research. And there IS hope for each individual Migraineur.
Though the focus of the site is to give migraineurs a face and a voice through video, written submissions will also be accepted.
Let’s hear Kelly explain Project Migraine Hope in her own words:
To get you started with ideas, here’s the first part of Kelly’s own story:
4 February 2012 @ 10:00 am
Hi, my name is Robin. Although this message may not exactly be hopeful, I still had to comment. I just watched your story and it made me cry; because it sounds so much like my story. I got my first migraine the day after I graduated high school, and it lasted 8 days (that was in 2000). Since then it has grown and morphed into the complete center of my life. I also have CDH. I’m even on disability for them. I’ve been to so many doctors and on so many drugs that I’m losing track of them all… I just recently got engaged to the most wonderful man in the world, and as happy as he makes me I worry that I’m just sentencing him to a life taking care of “the sick girl”. I think what you’re doing is great because it is so easy to feel like no one understands and no one is in the same boat. After spending the week in agony and in the ER this is the first thing that made me feel hopeful. I just had to tell you that. Thanks.
7 February 2012 @ 4:40 pm
Robin, I’m so glad that watching my video story was moving to you. I hope that you will also share your story. Each of our stories are important. We all need to know that we are not alone!
Come on over to http://www.projectmigrainehope.com and share your story.
Keep holding on!
Kelly
7 February 2012 @ 4:37 pm
James,
WOW! Thank you so much for posting about this! I’m behind on my blog reading! I really appreciate you getting the word out. I would love to have you and your readers share your story! Together we are stronger!
Thanks again, James! It means a lot.