Comments on: Surgery for Occipital Neuralgia

By: Cindy

Cindy — Sun, 20 May 2012 01:13:27 +0000

My pain Dr. put me on Nucynta which has helped some with the nerve pain and now it comes in a slow release form. I am getting off Oxycotin and replacing it with the slow release Nucynta. I will be detoxing myself next month…and am not looking forward to the experience but will be so glad to get off of it.
My Dr. is also trying to help me with my insurance so I can try an implant, even though he said it still has a 50/50 chance of helping, and after a while it even drops to 25 percent….not very encouraging.

By: Cindy

Cindy — Sun, 20 May 2012 00:48:07 +0000

thanks, Tara….I wish I could go to Nashville, which is where I am from, but my insurance is with Huntsville Hospital and I can only deal with their doctors….

By: Cindy

Cindy — Sun, 20 May 2012 00:38:35 +0000

Michelle,
Just wondering how you are feeling now…did the nerves regenerate and the pain come back all over again? I am getting scheduled for a stim implant as a last resort, I cannot go to a Dr.out of my insurance.
Cindy

By: georgia

georgia — Sat, 19 May 2012 00:36:50 +0000

hi, i’ve had on since 2009 after a 2nd radiofrequency 7months apart. the medial branch nerves had not regenerated. i was pain free. the doc hit my occipital nerves. i didn;t know about how the nerves regen’t then. i had facet joint disease. i was working as a nurse i can’t forgive myself for not reseaching. i just thought the pain would stay gone longer. i’ve lost my life. i’m alive but i have no qualility. be carefull with the burning. i’m on morphine and oxycodone. i want my life back just like you all. i want to have the nerve froze. cryoneurolysis. does anyone know about this? my heart goes out to all.

By: Amanda

Amanda — Thu, 01 Mar 2012 01:14:35 +0000

I am going in for my 5th and final nerve block tomorrow. Then the next option is RF. I’m ready for a more permanet fix…. I wish they would give some kinda at home shot. There was 4 straight days I went to the ER and got a shot of dilaudid but then they said I had to see my doctor who does nothing… sounds like there is no help fir this condition….

By: phillip hale

phillip hale — Tue, 28 Feb 2012 22:48:37 +0000

My wife suffers from this condition and has had the RF done twice. I can tell you it works but the only drawback is that it is not permanent. The first time it wore off after 2 months, the second after a year and a half and she is now in the same boat you are with her next RF scheduled for next week. She has Roxycodones and torredal shots for relief when the RF wears off but it does not take the edge off as good as the dilaudid. Unfortunately the ER will only give the dilaudid once and the next day they will only give out torredal and perkasets. Her RF wore off over the weekend and her pain shots we had at home were expired because she hadn’t needed them.

By: Amanda

Amanda — Tue, 28 Feb 2012 01:05:35 +0000

Ive tried that med before it did nothing for me.

By: Barbara Brown

Barbara Brown — Mon, 27 Feb 2012 21:59:31 +0000

Amanda, Just don’t let them give you what is called a 100% alcohol nerve killing shot in the occipituls. I had that done about 5 years ago now, and I have nerve damage now and my head hurts all the time 24/7. Ask your Dr. for Maxalt. It may provide you with some relief. It’s a migrain intervention drug you dissolve on your tongue so it gets into your system fast. Good luck to you and may God bless your efforts.

By: Amanda

Amanda — Sat, 25 Feb 2012 00:10:06 +0000

Hi! I’m 23 soon to be 24. I have been experiencing these headaches since my early teens. I was diagnosised w/ ON a little over a year ago. I’ve tried physical therapy, and nerve blocks (4). I’m on my 2nd neurologist. They will give me NO pain meds for my headaches. I got ibprophen 800mh ultram 50mg and flexril 10mg from my faimly doctor to take as a maintenance meds. I make multiple trips to the E.R. just to get a lousy shot a dilaudid for 4 to 6 hours of taking the edge off so I can rest. The anestesiologist said after one more nerve block if it does not help that he will refer me to get the RF procedure. I’ve looked this up and I am very unsure of it. All I want is to be pain free. I spend most of my weeks at work suffering and weekends in bed missing out on family and regular life just to survive the 5 day work week to pay my MEDICAL bills!!!! I am open to ANY feedback.
Thank you in advance,
Amanda

By: Tara

Tara — Fri, 10 Feb 2012 21:58:24 +0000

Cindy, I live in AL too and have been fighting with BC/BS with a different headache condition for 3 years now. I have just found a group called Migraine Treatment Centers of America who has a partner physician in Nashville. These physicians perform the Omega procedure – which is occipital and supraorbital stimulation. They fight insurance companies for you to try to get it approved. Good luck!