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10 Comments

  1. Nebby
    14 November 2012 @ 2:02 pm

    This just exactly describes what my son had until recently. His inital headache began while travelling; I couldn’t say the exact day. It was constant for 6-8 weeks, then went away on its own. But a couple of months later came back on 10/19/2010 (see I can tell the date this time because it was so sudden). Then he had it constantly for almost 2 years. It was always in the same place, across the front of his forehead. he saw 2 neurologists, tried different migraine meds. He only began to have some relief when we tried acupuncture and now has been headache-free for 3 months through a combination of acupuncture, homeopathy and prayer. I know our solution may not work for everyone but I just wanted to share his story and what did work for him.

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  2. Bobbi
    26 November 2012 @ 11:45 am

    I’ve had my headache for almost 10 years but my memory is so bad now I couldn’t tell you when this all started. The headache has affected my memory and all aspects of my life, couldn’t tell you if it’s NDPH or otherwise at this point. Seems pretty pointless all in all…

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  3. Jennifer
    29 November 2015 @ 12:10 am

    September 10, 2005 I had had a bad cold for 4 days, but I thought I was starting to feel better. I am a teacher and I had essays to grade. The back of my head started to hurt, but I kept grading. The pain seemed like it grew inside my head until I couldn’t concentrate at all and got really dizzy. I had trouble calling for help, but eventually I got my neighbor on the phone and she took me to the hospital. my bp was really high. They did a lumbar puncture and sent me home with pain meds. I remember almost everything about that night. It was the start of my next 10 years of headache and dizziness hell.

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  4. john
    18 January 2017 @ 3:14 pm

    My son had NDPH for 9 straight months. In January 2017 he was treated at Jefferson Hospital in Philadelphia as an in-patient for 7 days after which he was headache free. They treated him with a combination of meds – Lidocaine, DHE, Magnesium, Haldol and toradol.

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    • Kathy
      2 May 2017 @ 9:09 pm

      Is your son still headache free? My daughter had NDPH for 9 month a couple of years ago. It faded on its own. Now she has it again for the last 6 weeks. Curious if this combo of drugs is still working. Told there is a back order of DHE.

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      • Jim
        24 July 2017 @ 2:40 pm

        My 14 yo son has had NDPH for 9 months now following a Mono infection. Is your daughter headache free again? Its seems really hard to abort this headache and not much is research done to help find a way break the cycle. We’ve tried everything kind of med. Nothing helps. His doc (Boston Children’s) is advising against the inpatient IV meds only as a last resort.

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  5. David
    2 October 2017 @ 3:26 pm

    I am not sure my headache is chronic migraine or NDPH. Some doctors said it was NDPH some said it wasn’t. I am very depressed right now because I’ve tried literally everything including Infisions but nothing has helped. Any type of advice would surely help. I feel I have no choice but to go to a pain doctor and get on narcotics to numb the pain. I know that’s not an answer but I really have no choice.

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  6. Diana
    27 January 2018 @ 10:57 am

    Diagnosed with NDPH about 1 year ago. I’ve had a daily headache, morning, noon, and night, since June 2016. Ive had MRI, MRV, and the spinal tap thing. Nothing!! Im on my 3rd headache specialist, one of the best now, UC in Cincinnati. Hes great! My second neurologist suggested physical therapy. At first I was very skeptic, but after a year and a half of treatment, it is my “go to” answer for pain control. They have taught me how to lay down, get up, sleep, sit, stand, what to eat, what not to eat., and drink. and numerous other suggestions on bringing down the pain level. Im off of caffeine, for a year now, and beer. No alcohol in my life anymore. Slowly weening myself off of chocolate. Im on a daily regimen of Magneisum, Riboflavin, and Co-Q10. 300 MG of each, once daily. Pain level over the past year and half has dropped from scale of 7-8 to .5-2 on a daily basis. With some days being worse than others, depending on the day Im having. They also tried me on numerous antidressants, which I hated and got off of after a few months. They started me on 100 mg of Topomax. Which after 2 months, not much relief, in which I developed a never ending eye twitch. Reduced the mg, no avail. Im off of that now. Eye is back to normal. So, no prescription drugs, only nature vitamins, and PT. An occasional 600mg of Advil. But the pain is very persistant. I suffer everyday, on some pain level, but life goes on for me. Im 55 years old, a mother, grandmother, wife, and I hold down a part time job everyday. I cant give up !! Its just a headache, right? otherwise, Im healthy. I am a former runner of 13 years, 5Ks, 10Ks, and half marathons. Ive settled for just walking now, but it works for me. So, my suggestion to anyone who also suffers from this condition, mention physical therapy to your doctor. For me it is a life saver.. Also, an app called “Miagraine Buddy” works also. Keeps a personal daily diary of your habits, and treatments that help you the most.

    Good luck to all, and my we all be headache free someday soon!!

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  7. BettyJo
    21 March 2018 @ 11:11 am

    I had mine since 2006 when I had my surgery for my stomach it went away for a year but when my year date of my surgery mine came back in full strength now I am dealing with it everyday it is hard now I got the symptoms of not eating dizzy. Vomiting and do not want to be in light even not to be around anybody but it is hard when u have two kids with autism.

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