Comments on: Vertigo – could it be migraine?

By: Penny

Penny — Fri, 30 Mar 2012 10:43:12 +0000

Hi Joe,
I have had Basilar Type Migraine for about 5-6 years. I’ve tried all the drugs you mentioned only to find myself a brainless idiot who couldn’t remember my own name. Finally Epilim worked – it controls it but I can still feel it is there! I still get very painful migraines but not the loss of feeling is not as bad – just tingling in the lips or face. I also went off gluten (my stomach was in bad shape) and I got a mouth splint for TMJ.
I hope these suggestions may help.

By: Penny

Penny — Fri, 30 Mar 2012 10:37:27 +0000

I have it too Janice, I also have Basilar Type Migraine. I spent five years almost unable to function at all and vomited every day of that five years. After many trials of many drugs I’ve found Epilim to be the most effective for me. But I still live with not knowing if I will be able to see, walk, concentrate or if I’ll get an excruciating headache and lose the feeling down one side of my body at any time, however I’m finding I’m getting the vertigo less severe now and the headaches are not quite as painful. I did find out I was gluten intolerant and so address my diet – I was only 40 kgs when I was finally diagnosed! I also got a mouth splint for my TMJ from the dentist. I’m not sure which has helped – but life is better than before.

By: Cindy

Cindy — Thu, 29 Mar 2012 16:44:39 +0000

Ok, I’m new to all this, but believe what I have to be vertigo and migraines the day after. I experience a “rollercoaster” effect that literally makes me feel like I could bottom out in my chair at work, even though I am sitting completely still, then there are times I am sitting there and feel the room start to spin round and round. Lately I have noticed the next day that I have severe headaches that are in my temples and in the back lobes of my head, and I am nauseated beyond belief. I have been on Topamax for several years, but I started taking that for muscle burning/tightness in my left shoulder. I recently increased my pills, but am not getting much relief and the headaches are getting worse. I’m wondering where I go from here?

Also, weight has been a constant problem for me my entire life and would love to get this in check, and since I’ve been on the meds, noticed I have trouble losing weight and trouble with memory. Could really use some guidance here!

By: Kevin

Kevin — Mon, 12 Mar 2012 01:14:20 +0000

Joe,

I was wondering uf you are better niw? I too have vestibukar migraine and have been ver sick for one year. Woukd like to hear from you.
Kevin

By: Penny

Penny — Thu, 23 Feb 2012 13:10:25 +0000

Hi there, I tried Serc (when I was diagnosed with Menieres) then after the diagnosis of BTM/migraine assoc vertigo – I was prescribed Pereactin, Topamax, Veramapil and Epilim. I was on Topamax and Epilim at the same time but found I just couldn’t remember a thing! And I’m not over stating that! I’m now just taking Epilim. But I totally changed my diet to Gluten Free/Preservative Free and my dentist was very confidant that a TMJ splint might help. All-in-all after 5 years of hell – I’m feeling better. Best of luck to you. I feel so sorry to hear of anyone with this awful condition. Oh and Magnesium and Zinc have helped me too.

By: Penny

Penny — Thu, 23 Feb 2012 12:59:42 +0000

I have BTM and Migraine associated vertigo. It took about 3 years to get a diagnosis. I had been told (and subsequently treated) for Menieres disease. My life was hell – every moment of every day! I vomited and had diarrhoea all the time. My legs, hands and face were numb, my eyesight was overcome by a white fog, I had extremely loud Tinnitus and the pain in the back of my neck (and even upper back) was unbearable. I was having real problems with basic brain function such as spelling and maths. I even had trouble with maps and finding my way around, I also had a very poor memory. I couldn’t drive!!! By the time the 3rd Neurologist made his diagnosis I weighed 40 kgs and my husband was starting to think I may die!

I’m pleased to report I’m feeling a lot better. I’ve changed my diet (no gluten, no pork, no preservatives), I use a splint for TMJ and I have found Epilim the best medication for me. I’m not completely without symptoms but I’m feeling more confident (about going out) and much happier AND I’ve gained weight – 48 kgs now. I’ve even returned to work. )

By: Monika

Monika — Sat, 12 Nov 2011 19:34:19 +0000

I have suffered with Migranes for almost 40 years and instead of getting better they are getting worse.And for the past couple of months I started to also have severe dizzyspells with them and some other things which I usally dont have ,so when I went to see my Doctor I was told I may had some mini strokes.I didnt know with Migranes that you could have a stroke and so I started to read up on it and what I found amazed me.I didnt realize just how much damage Migranes could cost,so I will definitly have my Doc run some more tests.And after reading everyones post is helps to know I’m not alone in this fight and the Health community realizes it that its not our imagination and these Headaches are for real. Keep on fighting and prayers fro everybody.

By: Cathy

Cathy — Sun, 04 Sep 2011 23:40:52 +0000

I was diagnosed with Basilar Migraines in 2010 it took over a year for them to diagnose this. I would wake up with a dizzy spell and there are times when I would be standing and feel like I was going to fall over. It was very scary. There was no headache which to me was very strange. I do not take any medication for the migraines I do take blood pressure medication for my high blood pressure. My neurologist told me to take Magniusum and Vitimin B supplement. I think what is so scary is waking up with a dizzy spell. I did not have a migraine for over 10 months until this morning. After reading everyones post makes it easier to know I am not alone. My prayers are with you guys

By: Linda Benton

Linda Benton — Sat, 15 May 2010 19:19:17 +0000

Hello everyone. I am a concerned parent who has a daughter that suffers with vertigo, ataxia, sudden blindness, nausea, altered levels of consciousness and pressure behind the eyes. She has been suffering with these host of symptoms for over a year and they continue to worsen, impacting greatly her quality of life. She has seen several doctors and none have given her any relief. She has had to retrain herself in mobility, just to be able to minimally function. The current neurologist she is seeing has diagnosed her with Bickerstaff Syndrome and has prescribed exercises, Topomax and Inderal none of which have helped manage her symptoms. She is very frustrated and feels no one is taking her very seriously. She lives in Maine. I feel helpless because she is getting to the point where she doesn’t even want to go to the doctor anymore. Does anyone have any info on MD’s dealing with this issues or how I can guide my daughter before something more awful happens, Thank you in advance for any advice you might be willing to share.

By: jackie

jackie — Thu, 29 Apr 2010 15:20:17 +0000

i am 36 years old and a sufferer of migraine and vertigo. It comes around the beginning of the period and the vertigo continues also after the period stops, leaving me unble to function properly mentally and physically. My migraine does not always manifest itself the same,’cause sometimes it came without pain but carries also always the vertigo. Has anyone has the same symptoms?