Comments on: Visual Snow and Persistent Migraine Aura – tests and treatments http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/ Thoughts and information about the latest news in the world of migraine, cluster headache and other headache treatment around the world. Wed, 23 May 2012 02:41:13 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: Danielle http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-148911 Danielle Sat, 24 Dec 2011 03:25:22 +0000 http://headacheandmigrainenews.com/?p=1339#comment-148911 Hi everyone! I'm so glad I found this discussion. I am 27 and I have suffered from VS, PMA and lots of floaters for as long as I can remember. I saw a few opthamologist who couldn't find anything wrong and finally saw a neuropthamologist last week. He ordered an MRI and I suppose he will progress from there. Besides the typical VS symptoms, does anyone suffer from dark floaters that are in the center of their vision and moves like almost in a tunneling motion? I only see those whole driving with the blue sky in the background. This is on top of the basic vs symptoms. I am not sure of its related and I notice it more when I'm tired. By the way, I have never done any hallucinagentic drugs. I live in Las Vegas and of anyone knows of a specialist that is familiar with this, please let me know. Hi everyone! I’m so glad I found this discussion. I am 27 and I have suffered from VS, PMA and lots of floaters for as long as I can remember. I saw a few opthamologist who couldn’t find anything wrong and finally saw a neuropthamologist last week. He ordered an MRI and I suppose he will progress from there. Besides the typical VS symptoms, does anyone suffer from dark floaters that are in the center of their vision and moves like almost in a tunneling motion? I only see those whole driving with the blue sky in the background. This is on top of the basic vs symptoms. I am not sure of its related and I notice it more when I’m tired. By the way, I have never done any hallucinagentic drugs. I live in Las Vegas and of anyone knows of a specialist that is familiar with this, please let me know.

]]> By: Leonardo http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-145405 Leonardo Tue, 13 Dec 2011 20:17:06 +0000 http://headacheandmigrainenews.com/?p=1339#comment-145405 Hi everyone, this is Leonardo from Italy. I would thank everyone who shares his/her experience here because it certainly it’s important to know not to be alone living wit this condition. I’ve been living with visual snow and tinnitus since I was borne, now I’m 34, continuosly, 24/7. All the doctors I’ve consulted so far are not aware people could have this simptoms continuously, mostly don’t admit they don’t know the cause and consecutively how to cure them. I would keep in contact with anyone is willing to share feelings and informations about visual snow hoping it will be useful to support each other (not complaining but supporting, helping). Thanks :-) leonardodiliso@gmail.com Hi everyone, this is Leonardo from Italy. I would thank everyone who shares his/her experience here because it certainly it’s important to know not to be alone living wit this condition.
I’ve been living with visual snow and tinnitus since I was borne, now I’m 34, continuosly, 24/7.
All the doctors I’ve consulted so far are not aware people could have this simptoms continuously, mostly don’t admit they don’t know the cause and consecutively how to cure them. I would keep in contact with anyone is willing to share feelings and informations about visual snow hoping it will be useful to support each other (not complaining but supporting, helping). Thanks :-) leonardodiliso@gmail.com

]]> By: chloe banks http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-133004 chloe banks Tue, 18 Oct 2011 19:16:29 +0000 http://headacheandmigrainenews.com/?p=1339#comment-133004 hello people, i have just realised that i dont just have visual snow i thought it was just visual snow...... until i googled what somebod elses put "Blue field entropic phenomenon" .... does any body else have this and is this one also uncurable like vs?? Thanks girls and guys :) Chloe hello people, i have just realised that i dont just have visual snow i thought it was just visual snow…… until i googled what somebod elses put “Blue field entropic phenomenon” …. does any body else have this and is this one also uncurable like vs??

Thanks girls and guys :)

Chloe

]]> By: Candi Malburg http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132653 Candi Malburg Mon, 17 Oct 2011 01:21:01 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132653 Good news April!!!! Hahah skype... Just type in skype on your search engine and download it and register. Give her your skype user name and she will request you. You have to have a video for it to do it that way. Sorry your vision is worse today hopefully it settles back down. Hugs!!!! Good news April!!!! Hahah skype… Just type in skype on your search engine and download it and register. Give her your skype user name and she will request you. You have to have a video for it to do it that way.

Sorry your vision is worse today hopefully it settles back down.

Hugs!!!!

]]> By: April http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132632 April Sun, 16 Oct 2011 22:24:53 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132632 Hi Guys Chloe i am very happy to see u using ur energy in something productive. It is much better then being depressed. Today my eyesight is worse i dnt know why but i m not stressing about it. Ok good news (Candi listern up girl!) i have been able to get into contact with Lucia M. Vaina M.D.Ph.D.Professor of Neurology, Neuroscience and Biomedical Engineering and she is actually doing research not on VS but something like it. She wants to do skype with me ( i dnt really know what that is :( ) but ill do it she wants info on VSers. So i will be ready to chat with her as soon as I work out what Skype is...i will let u guys know whats happening! Hi Guys
Chloe i am very happy to see u using ur energy in something productive. It is much better then being depressed. Today my eyesight is worse i dnt know why but i m not stressing about it. Ok good news (Candi listern up girl!) i have been able to get into contact with Lucia M. Vaina M.D.Ph.D.Professor of Neurology, Neuroscience and Biomedical Engineering and she is actually doing research not on VS but something like it. She wants to do skype with me ( i dnt really know what that is :( ) but ill do it she wants info on VSers. So i will be ready to chat with her as soon as I work out what Skype is…i will let u guys know whats happening!

]]> By: Candi Malburg http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132626 Candi Malburg Sun, 16 Oct 2011 21:42:13 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132626 Hi Chloe, Its good to see you in good spirits. I actually know someone who had bad vs and took the flunazarine recently and said he is 80% better, so that is wonderful news. I myself have thought about taking it but i was on a better blocker, well 2 weeks after stopping one, when my symptoms started so have been hesitant at taking it even though it could he my best chance lol. The side effects can be bad including depression which ive had a history of years ago. But my friend who is taking it says hes had no side effects. So that is hopeful!!! Please let us know your results!!! Hugs and prayers, Candi Hi Chloe,
Its good to see you in good spirits. I actually know someone who had bad vs and took the flunazarine recently and said he is 80% better, so that is wonderful news. I myself have thought about taking it but i was on a better blocker, well 2 weeks after stopping one, when my symptoms started so have been hesitant at taking it even though it could he my best chance lol. The side effects can be bad including depression which ive had a history of years ago. But my friend who is taking it says hes had no side effects. So that is hopeful!!!

Please let us know your results!!!

Hugs and prayers,
Candi

]]> By: michael http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132620 michael Sun, 16 Oct 2011 21:21:50 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132620 Thanks, Chloe. Good info. I tried Verapamil (also a calcium channel blocker) 20 years ago---didn't help me. But all sharing of information is valuable. Can I suggest you invite the 4 people you mention who benefited from Flunarizine to share their info on this site? The more direct the connections we all have, the better. Thanks again. And pleae keep us posted if you decide to try the med. michael Thanks, Chloe. Good info. I tried Verapamil (also a calcium channel blocker) 20 years ago—didn’t help me. But all sharing of information is valuable. Can I suggest you invite the 4 people you mention who benefited from Flunarizine to share their info on this site? The more direct the connections we all have, the better.

Thanks again. And pleae keep us posted if you decide to try the med.

michael

]]> By: chloe banks http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132617 chloe banks Sun, 16 Oct 2011 21:13:21 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132617 hi guys, hope everyone is ok .... ive got some interesting news that i thought i would share. when looking into our problems i came across a medication that has seem to dramaticall decrease all our syptoms. i was wondering if any of you have tried Flunarizine 5mg?? i have heard that it can be quite expensive though if you are not in the UK, but im not sure if this is true. Please let me know if you have tried this as i am deffiantly thinking of going to the doctors this week and trying it while im waiting to see the neurologist??? So far i have found 4 people that now find there symptoms dont even bother them anymore.... How exciting if this actually works. .. Let Me Know Thanks Chloe :) hi guys,

hope everyone is ok …. ive got some interesting news that i thought i would share. when looking into our problems i came across a medication that has seem to dramaticall decrease all our syptoms. i was wondering if any of you have tried Flunarizine 5mg?? i have heard that it can be quite expensive though if you are not in the UK, but im not sure if this is true. Please let me know if you have tried this as i am deffiantly thinking of going to the doctors this week and trying it while im waiting to see the neurologist??? So far i have found 4 people that now find there symptoms dont even bother them anymore…. How exciting if this actually works. ..

Let Me Know
Thanks
Chloe :)

]]> By: April http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-132111 April Fri, 14 Oct 2011 02:43:39 +0000 http://headacheandmigrainenews.com/?p=1339#comment-132111 Hi guys Firstly Micheal have u received the infomation I have sent to you? And Chole i also get that feeling in my legs and arms Pls join us at Facebook there u will find many VSers that support each other. the link is on one of my posts. Ill see you there! Hi guys

Firstly Micheal have u received the infomation I have sent to you?
And Chole i also get that feeling in my legs and arms
Pls join us at Facebook there u will find many VSers that support each other. the link is on one of my posts. Ill see you there!

]]> By: Chloe banks http://headacheandmigrainenews.com/visual-snow-and-persistent-migraine-aura-tests-and-treatments/comment-page-2/#comment-131852 Chloe banks Wed, 12 Oct 2011 12:43:17 +0000 http://headacheandmigrainenews.com/?p=1339#comment-131852 Has anybody else had weird feelings in there arms and legs? Has anybody else had weird feelings in there arms and legs?

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