ACT Now Advocacy Training Program

If you’re seriously interested in fighting against migraine and headache, you might want to consider the free ACT Now Advocacy Training Program that will be starting in July.

You might be familiar with Miles for Migraine, a non-profit organization in the USA which encourages fundraising for migraine research and promotion of materials that will educate and end social stigma. The “miles” come in during the regular “runs” which are used as fundraising events.

Well, the same group also has a training series of 8 virtual meetings to educate patients, caregivers and advocates. Here they explain some of the problems that they’re trying to solve:

The size and strength of a disease advocacy movement is one of the strongest predictors of resource allocation to that disease. Migraine and other headache disorders currently lack resources; lack of resources likely means limited diagnostic ability and fewer therapeutic innovations. For example, the National Institutes of Health (NIH) consistently provides low-levels of funding relative to the disease burden of migraine; recently headache disease research warranted more than $103 million/year relative to disease burden but only received $6.8-$13 million/year.

ACT Now: The Advocacy Connection Team

If you’re interested, you can read about all the presenters and sessions here. Note that, as I write this, the dates have not been updated – there will be about one session a month, starting in July. But this will give you an idea of what’s coming.

The training program is completely free, but you do have to register, and, of course, attend the sessions.

To register now, or to request further information, just go to ACT Now Advocacy Training Program July Series – Patient Submission Registration.