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2 Comments

  1. Heidi
    20 March 2011 @ 1:44 pm

    Do you know of any current research studies for familial hemiplegic migraine? Or any charities, organizations, etc. that are trying to raise money for the research?
    Thank you!

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  2. Niki
    24 October 2011 @ 5:57 am

    I would also be interested to participate in any research studies into FHM. My life is debilitated by these and my son and daughter have both started presenting with them.

    My FMH affects my left hand side with dense paralysis and loss of consciousness, followed by days or weeks of confusion, slurring and loss of motor function.

    Unfortunatly people don’t know much about them, so even doctors assume it’s a stroke and I get whisked off in an ambulance at the drop of a hat, I only need a bit of facial drooping and I’m getting the blue light treatment. I want my life back, so will do anything to find out how to make this better.

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