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8 Comments

  1. Lauren Puglisi
    17 June 2013 @ 8:33 pm

    Don’t even get me started about Topomax…it earned the name “The Stupid Pill”.

    Reply

  2. Joann
    17 June 2013 @ 10:20 pm

    I think you hit the nail on the head, Quality of life. I went on those meds, the exact ones, in the exact mix. I could not speak, think or function. They cost me my family and my way of life. And they did not help my migraines. I will suffer with daily migraines, with no pain meds, with the loss of many days. The meds have to improve, not just throw something at them that does not work for even a third of sufferers, I appreciate your advocating for all of us and putting the facts our there, I only wish that everyone understood the disease and the money was there to investigate new options, The drug companies are making money on these drugs that don’t work, help us with options that do.

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  3. Patricia McMurtrie
    18 June 2013 @ 10:04 am

    James, Did the study only include Rx formulations, or did it also include clinical studies that were done with homeopathic migraine pain relievers as well?

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    • James
      21 June 2013 @ 9:31 am

      I believe this study focused on medications, not on supplements, herbal treatments, etc.

      Reply

  4. chris
    19 June 2013 @ 12:03 am

    “The drug companies are making money on these drugs that don’t work, help us with options that do.” absolutely correct and you hear doctors talking about ‘medication over use’ and placing the blame back on the patient, well you can’t get sumatriptan in the UK over the counter, you have to have a doctors prescription and it’s the first thing they prescribe when you tell them you can’t work. They don’t tell you that further on up the road it ‘can’ make your condition worse, and when you do get worse they offer another triptan – it’s a scandal. But I can say to you that the muscles in the face and neck are far more involved than doctors tell you, the evidence is in the efficacy of botox of-course it’s more than just that, but with awareness it’s something people can control mostly without any drugs and just a sleeping device for bruxism.

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  5. Russ Evans
    8 May 2016 @ 6:15 am

    I’ve been on Topamax for several years now. It had the single largest, positive effect on my migraine/cluster headaches of anything I’ve ever tried. I did have the “stupids” for quite some time, but the word searching and memory issues have improved a lot. I’m also on two other daily preventive prescription medications. Let’s face it folks, what we have is no simple, easy brain disorder to fix, it’s different for all of us, and there is and likely never will be a “silver bullet.” I’m sorry for those of you who have lost family and friends; we’ve all lost time, missed important events in the lives of those we treasure, and cursed ourselves for not being strong enough to push through the pain and other symptoms to try to maintain just a “normal” life. I thank God for every day I’m “vertical” and can function without the effects of this disorder. A great, understanding doctor and properly prescribed medication allows me more good days than bad, and for that I am truly thankful.

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  6. Mary B
    21 December 2016 @ 9:43 am

    It seems this is an old blog. Hopefully new things come up. I have done Topimax twice. I got the “stupids” very bad the first time. I went off it because of it even though it did help. Over a year later I went back on it, and knew what I was getting into so I started writing down important things I said to my kids (yes my kids took advantage of this) and well, kept a diary of sorts of important things. That side effect got better over time. My headaches can really get me down so I have better days than worse days and my new doctor is adding to this med. I start it as soon as i pick it up from the pharmacy. But the topimax has kept me more or less out of bed most days all day. It’s not perfect, and I still need to rest some, or even nap on some days as I get headaches daily, and migraines at least several times a month, but I’m so thankful for it. I also have neck and lower back issues so I’m a hot mess. Being a single mom of 3 kids is not always easy being well, but being sick is even harder, and I’ll take all the help I can get, and if i have to take notes and be put out a bit, I’ll take what I can get.

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