12 ways to Evaluate Migraine News

I’ve read hundreds of news stories on migraine, cluster headache and other types of headache.  I’ve listened to the radio, heard podcasts, watched TV and read magazines.  And I’ve learnt two things.  News stories can be helpful.  But sometimes they can obscure the truth more than they reveal it.

Evaluating migraine news

Below are 12 ways to evaluate news stories, especially those about migraine or headache.  This is especially helpful when your Aunt Zelda mails you an article she clipped out of her local newspaper, informing you that at last there’s a cure (ie you no longer have any excuse to lie around sick)!

One disclaimer.  You’ll notice a lot of these tips are negative.  Don’t get me wrong – I appreciate good journalism, and of course I’m including here your evaluation of blogs like this one.  Just because an article does something wrong, almost never means you should discount it completely.  It might mean you should question conclusions, or check more sources (I like to see at least two or three sources and usually some more background before I report on something).

Very few of these things make me totally discount the whole story, although I admit a at least one or two make me pretty annoyed.

  1. Be suspicious of "too-good-to-be-true" or miraculous claims
    Be extra suspicious if you read about the suppressed or newly-discovered treatment that will soon sweep the world.  It may be true – I hope it is, but experience shows two things.  First, it probably isn’t so.  Second, if it’s that newly discovered there are probably years and years of testing ahead before it will be available to you.  Keep your eyes open, watch for progress, look up other sources, and be patient.
  2. Try to find information beyond TV, radio, and headlines
    TV and radio are notorious for giving us little bits of information, but not going into more depth.  If you’re really interested in a topic, go to the library and pull out some books, magazines and journals.  Or, surf the web for credible information from a variety of sources.

    In the same way, headlines are often very misleading.  Read the rest of the article, and look for facts.

  3. Realize that the same story from the same source is recycled and reused many times
    "But I heard the same thing on CNN!  And on FOX!  And on CBC!  And in the Times, and the Sun!"  Yeah, me too.  And you might find that they all had suspiciously similar wording.  The reason is, they all got the information from one source and just recycled the story.

    There’s nothing wrong with that – however, just remember that just because it’s often repeated does not mean it’s true!  Count all those similar articles as one, then look for more in-depth information, sources, and background.

    You may wonder why I often send you to other websites in my articles.  It’s because I never want you to rely on one source – look at the same thing from many points of view.  Good sources with good research can disagree.

  4. Watch out for the words "press release"
    Often a drug company or maker of a supplement will come out with a "press release" that makes great claims for their new migraine or headache treatment.  That’s fine, but remember that there’s bias here in favour of the people trying to sell you something.  They may even quote studies (that they might have funded) – but you can bet they’ll overlook studies that aren’t so positive.
  5. Analyze the research
    Where was it done? how many people? was it "controlled"? were the subjects only from a certain country, or economic class, age, or gender?  I could write a whole article on how to do this, but for now just realize that the value of studies varies drastically.  For example, a study of 12 women in a clinic in New York is a lot different than a study following 234 men and 344 women over 12 years.  One study is also different than a "meta-study", which collects data from several studies.  The Cleveland Clinic has some good tips on evaluating studies and trials.
  6. Don’t get too excited about personal stories
    "I feel like I have my life back, and I’m so grateful."  "It is great that he is enjoying his life now."  "Her agonizing migraines had stopped their monthly, miserable appearances."

    Have you heard quotes like these in news stories?  Me too.  They’re great – they add that human interest element, and give hope.  However, realize that this is one person out of millions.  It may turn out that there are very few people who will benefit from whatever the treatment is.  Don’t make the jump from one person to millions with migraine.

  7. Be suspicious of words like "cure"
    I did a survey of migraine news reports over the past 5 years.  Of the reports that made claims of a cure for migraine, 95.2% were actually talking about what I would call a treatment.  In fact, many of the articles went on to explain that the so-called cure only helped a percentage of migraine sufferers, or only decreased the number of attacks.

    The other 4.8% of articles weren’t talking about a cure either – they were talking about websites that claimed that they had a cure – scams, in other words.  None of the news articles were actually talking about a real cure for migraine!  No wonder your family and friends are confused.

    To make matters worse, many of these treatments have since fallen out of favour with new research.

    I have to admit, this one really drives me crazy.

  8. Remember that statistics can be deceiving
    I love statistics.  They’re fascinating.  Often very helpful.  But often not.

    Statistics can contradict each other.  Depending on how the study was done, and how you report it, you can often make them say what you want.  Statistic usually do tell us something, but ask yourself what that is.  News stories often tend to jump to conclusions beyond what the data is suggesting.

  9. Don’t jump to conclusions
    Oh yes, don’t you jump to conclusions either!  But you already knew that, right?  😉
  10. Check the date
    In this day and age when you can check news stories from the 1800s on the Internet, be sure to find out when the story was printed, and when the study (if there is one) took place.  Sometimes a news story will report on a study years old, which is fine (many are overlooked!), but you need to know that.  If the story is old, check to see if there have been any updates on the treatment.
  11. Cure sick headache - 1885

  12. Check the sources
    Where did this information come from?  Where was the study done?  Was it published in a recognized medical journal?  Who funded it?  Can you check with the information on the website of the source (university, etc)?
  13. Watch out for old-fashioned words
    The world of migraine research is changing fast, and so is terminology.  Be cautious when you hear terms that are confusing.  The classic is the term "migraine headache".  What’s that?  Well, it does exist – it’s a symptom of migraine disease, but often it’s mistakenly used instead of the term "migraine".  Migraine is not a headache!

    Another example is "visual migraine".  What’s that?  It’s an old term for – well, that’s the problem, sometimes it’s used for different things.  (read more about terms like eye migraine and ocular migraine here)  Are they talking about retinal migraine?  Migraine with aura?  Migraine aura without headache?

    I don’t totally discount stories using old terms.  For whatever reason, some of the world’s top experts still use them.  But it is reason to double-check and make sure the person talking has the credentials to say what they’re saying.

Be careful out there.  There’s a lot of information, a lot of claims.  We need to ignore the bad and find the good.

I only have 12 tips – I probably could have had 15 or 20.  What have you learnt about deciding if a news story is worth your time?  Share a comment!

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4 comments… add one
  • Markus Dahlem Jul 6, 2009

    “12 ways to Evaluate Migraine News” should be read by those who seek information out there in the web. By providing access to medical information and advice it is possible for patients to assume much greater responsibility for their healthcare, but more often than not the providers have other things in mind. Would love to get you feedback, critical as it might be, on my work.

  • Holly Hazen Apr 15, 2016

    James, I love your articles, and I have to say I’ve read this one a few times and it is one of my favorites. Looking forward to reading more.

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