5 Signs You have Retinal Migraine

by James on 9 January 2009

A diagnosis of retinal migraine may be more and more common, but there’s still confusion over what exactly it is.  There are five signs that you can use to tell if you have retinal migraine, but don’t miss the important warning at the end…

  1. One eye:  First, the eye symptoms tend to be monocular, meaning they’re only in one eye.
  2. Visual disturbances:  So what’s going on in this one eye?  There are a variety of disturbances which other migraine sufferers may be familiar with.  This might include flashing lights, or patterns in your visual field.  There may be an area where your vision is impaired (ie dark spots), or even loss.  Even blindness in one eye is possible with retinal migraine.
  3. Temporary:  Permanent vision loss is another matter.  With retinal migraine the symptoms are reversible.
  4. Headache:  A headache typically starts during the visual disturbances, or within an hour after they stop.  The headache typically lasts between 4 hours and 3 days, is often one-sided and pulsating, and usually either includes sensitivity to light and/or sound, nausea, or both.  There is an increasing body of evidence showing cases of retinal migraine without headache as well.  There is an argument that the "headache" not be necessary for a diagnosis of retinal migraine, but usually it’s still included.
  5. Repeated:  In order to actually be diagnosed with retinal migraine, you need to have had at least 2 attacks.
Retinal migraine

Now that you’ve got the 5 signs, it’s time for the warning.  It’s very important that other causes have been ruled out.  It’s easy to get a misdiagnoses here, so some things are very important:

  • It’s helpful to see your doctor during an attack, so she can ask the appropriate questions to diagnose you.
  • You need to have a normal eye exam in between attacks.  Remember, this is temporary.  There are a number of things that can cause similar visual disturbances, such as brain damage, tumours, ischemic optic neuropathy (damage to the optic nerve) and other optic disorders.  Even if the symptoms are coming and going, it’s very important to rule out other causes.
  • Make sure your doctor has your medical history, and family medical history as much as possible.  This will help her narrow down the possibilities to the most likely.
  • If your symptoms don’t quite fit the above criteria, you may have another type of migraine.  Migraine aura without headache is a typical suspect if you have no headache, especially if you’re having symptoms in both eyes.  Migraine with aura is another possibility if you have the headache but your visual symptoms are more varied.  If you’re not sure about what your doctor is telling you, get a second opinion.

Researchers suspect decreased blood flow to the eye or optic nerve may be to blame for the unique symptoms of retinal migraine.  However, like other types of migraine, the overall cause is still a mystery.

The good news is that retinal migraine often decreases or disappears with typical migraine treatment.  Be sure to see a specialist and discuss your options.


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{ 9 comments… read them below or add one }

Farrah 30 March 2009 at 4:59 am

I suffer from pretty severe migraines. I’ve been getting them a few times a week for months now, and I’ve had mild to moderate headaches since I was around the age of six. My migraines tend to be more painful in my left eye, but I am totally blind, so I don’t know whether or not they would cause problems with my vision were I to have my sight. I do have Coates Disease and Retinitis Pigmentosa and have been to my retina specialist within the past few weeks. He said that my migraines weren’t being caused by anything that he saw in my eye, but is a retinal migraine something you can notice by looking at the eye? I’ve been to a neurologist, and before doing any scans on my brain, he prescribed 10mg of amitriptyline and told me that I could take one to three of the tablets every night before bed. The medicine worked, but it caused me to have even more nightmares than I already do. I was dreaming about deceased friends and family members. The drug caused me to be physically drained every day. I am a highschool student, so not being able to stay awake or remain focus isn’t something I can tolerate. My neurologist passed away, and a different neurlogist, who had never seen me in her office before, prescribed topamax. I was on the Topamax as long as it took me to ease myself off it. I found out how dangerous it could be, and I just didn’t think the sideaffects and risks were worth it. It made me very angry in the short time that I was taking it. Now I am trying a homeopathic aproach to treat my migraines. I am taking one tablet of migrafew before bed every night, but it doesn’t seem to be working. Please, if anyone knows anything more about what i have described here, send an EMail to me at armyloveangel@gmail.com.
Some of the simptoms of my migraines include: vomiting, nausea, severe eye pain, headache above the left eye, headache with drastically reduced pain on the other side of the head, temperature sensitivity, and sensitivity to light and sound.
I’ve always thought that maybe certain foods such as bread, spaghetti noodles, and chocolate were triggers for my migraines, but maybe not. Would it help to keep a food diary? I eat a lot of these things, so would it even be possible to deduce?
Thank you,
Farrah

Joy 2 July 2009 at 5:10 pm

Have you heard of vision loss following by a migraine after exercise? I am a runner and have started getting migraines after an intense run. I lose vision in both my eyes and then get a headache. The headache is manageable, but its the vision loss that really upsets me. I’m a Nutritionist and have to admit, I’m completely baffled on this one. Please help!!

mary 4 October 2009 at 3:14 pm

I am also a runner who has lost my vision after running. The first time in both eyes the next two times in the left eye. While I am running my left eye looks like I am looking through a fog/haze. Then about an hour or so after my eye hurts not my head. This only happens after about mile 7. I have had cat scans/ mris and an eye specialist who basically said deal with it because his son get these ocular migraines which is what they think I have. This morning I woke up after having an attack yesterday (Ran 13.1 slow) and my eye looks like somebody punched me. Any ideas. This sucks not being able to run

Joy 5 October 2009 at 11:36 am

Hi Mary, I had the same thing happening to me for a few months, as you can see from my previous comment. I know how frustrating it can be as a runner too. I took a very close look at my diet and realized it was linked back to some food additives like MSG and polysorbate 80. I am a very clean eater (I’m a nutritionist) so it was extremely baffling for me. However, I found that these additives were in some very not-so-obvious foods. Email me and we can chat if you like. joy@joyoushealth.ca

JAMES 12 October 2009 at 2:04 pm

IV,E BEEN HAVING THIS BLURRY VISION FOLLOWED BY THE MIGRAINE. LATELY IVE BEEN WALKING AND DIETING. i HATE THE BLURRY VISION THAT LASTS ABOUT 15 MINUTES.

ronald patterson 13 October 2009 at 2:53 pm

My wife has started having flashes of light in her left eye. No particular headache. I have read the above comments, and wonder if we need to see an Opthalmologist or a Neurologist? We have no insurance, but I’m fearful not do something. Any information as to the danger

ANNE 14 February 2010 at 6:45 am

I get flashing lights in both my eyes which lasts for about 10 minutes and then about 15 min later a headache.

Carol 18 February 2010 at 7:29 am

If you are having light flashes you need to see a retinal specialist immediately. I have had that and there is a chance you are having a retinal detachment. I have had detachments in both eyes and you really need a good eye doctor to detect this. Mine was caused by very bad nearsidedness. You usually do not get a headache with a detachment just light flashes.

Cynthia 5 March 2010 at 1:02 pm

I began retinal migranes sans headaches several years ago while under a lot of stress. They were diagnosed and went away after several episodes. Years later when I began medication for cholesterol they came back with a vengence, like five a day. I changed meds and they started again. Doctors didn’t believe it was the statin drugs but I found several others online that had experienced same.

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