Cluster headache has the very appropriate name “suicide headache”. It’s rare enough that we haven’t studied it nearly enough, and yet common enough to affect our communities in a big way, and individuals in a huge way.
With a shortage of good treatments, you would think that doctors would prescribe whatever will work that’s not a huge risk. So why is one treatment often overlooked?
That treatment is oxygen therapy.
Oxygen therapy for headache was first mentioned in literature almost 80 years ago, so this is not a new therapy. It’s also considered to be a fairly safe, stable option. As the Migraine Trust says:
Oxygen is one of the safest ways to treat cluster headache. You need to breathe the oxygen in at a rate of between 7 and 12 litres per minute. The treatment usually starts to work within 15 to 20 minute. For some people the attack is delayed rather than stopped altogether. [source]
An article from the National Headache Foundation last month lamented the fact that oxygen therapy is still underutilized for cluster headache:
Despite treatment guidelines recommending the use of oxygen for the acute therapy of cluster headache, oxygen remains underutilized. A recent study looking at the cost of oxygen for cluster headache found the reason for its lack of use may be because of poor physician awareness of the treatment, as well as the lack of understanding for how to write and fill a prescription for high-flow oxygen.
According to a recent study, the price of oxygen therapy varies quite a bit, but averages out at around $1000 per year in the USA. Most private insurance plans will cover it. So – why not make use of it?
It’s time for an update on our discussion of pillows for migraines. You may remember, this was the topic of a podcast six years ago – The Practical Pillow Podcast. Since then, there has been a lot more written on the topic.
Unfortunately, if you’re simply looking for the “best pillow for migraine” you’re going to be disappointed. Yes, there is a lot of advice out there. But a pillow is a very personal thing. And a pillow that works for your friend may not work for you. You don’t sleep the same way, your headache condition may be different, even simple things like room temperature, or your weight, could make a difference.
So here are some of the most popular pillows for migraines today, and some quick facts about them.
Memory Foam Pillows: Let’s start with the simple memory foam pillow. These have gained in popularity over the past few year, and have helped a lot of people. There are variations on the memory foam pillow, which we’ll see below.
If you haven’t looked at pillows for a few years, you’ll see that things have changed. The technology has improved quite a bit, and there is much more variety. One of the most popular today is the Z Zoned Memory Foam Pillow, which is supposed to be a lot softer than similar pillows from past years. They also make a travel pillow.
A common complaint of these pillows is that they tend to have a manufacture-chemical smell at first. The smell does fade, but migraine patients find they need to leave the pillow out for a while before using it.
Still, many migraine patients used them. One reviewer writes:
I suffer with regular migraines and I quickly learned that the pillow I slept with was a huge factor on whether or not I was going to wake up with a migraine or not so I am very picky, so lets say, used to suffer with regular migraines! Basically I need my head to feel it is floating on a cloud of nothing or I will be miserable when I wake up. I chose the high loft so my head doesn’t “bottom out” and kinda just suspends in this middle of cloudy softness… call me weird in the comments if you want but once you try an amazing high loft pillow you’ll understand what I mean 🙂 [source]
Countoured Neck Support Pillows: Many looking for pillows for migraines immediately think of contoured pillows. Many of these are memory foam as well (which is why I spent extra time talking about memory foam above). A typical example is the inexpensive MEJOY Memory Foam Pillow. If you’re looking to avoid memory foam, check out the Snuz Neck Support Pillow (there is an extra-firm option).
Buckwheat Pillows: Buckwheat pillows have a number of advantages. They provide premium support, being very firm. They have no chemical-smell. They adjust to the shape of your head. And they’re cool. You can even put them in the freezer for an hour before you use them to really cool your throbbing head.
I’ve often talked about buckwheat pillows for migraines. If there is a downside, it’s that they are very firm. It really depends on how you sleep. Also, if you move around a lot, you can hear the shifting of the buckwheat hulls.
“Cooling” Pillows: Because of the pulsing, hot headaches that many of us get, “cooling” pillows are a great option. Now, just a caveat here. Cooling does not necessarily mean that the pillow continually cools you all night. That may be the case if there is constant water flow. But generally it means it doesn’t hold heat in like many traditional pillows do.
One well-known brand is Chillow, but Chillow has changed. Generally what you get today is a “cooling pad” which you can use by itself or with a pillow underneath. You actually put water in the pad. Although some people swear by them, the hassle of adding water and possible leaks have hurt the popularity of Chillow (on the other hand, the price is right if you want to try it!).
A popular and inexpensive example of today’s cooling pillows is the Bluewave Bedding Gel-Infused Memory Foam Pillow. It’s ventilated, and gel-infused, to keep the temperature from rising while you sleep. You can also get very slim versions.
You can also get a pad to put on your favourite pillow, like the Penguin Cooling Pillow Mat. But before you just get a pad, remember you should be changing your pillow every year or two.
As you have probably guessed, there are also combinations of the above. Take for example the ViscoSoft ARCTIC GEL CONTOUR Pillow, which is a hypoallergenic, memory foam, contoured neck pillow!
Changing your pillow can make a huge difference in your health. Many people have found pillows for migraines – that is, pillows that fight migraine, as you’ll see in the reviews for the products above. But sleep remains very personal. You’ll have to try the pillow for yourself to see which one works best.
Final advice? Keep your head cool. If you buy memory foam, be prepared to leave it out of the box for a week or two before you use it. And make sure you make a good pillow a priority. You’ll be spending a lot of time on it!
Many of us are getting together with friends and family over the next couple of weeks. We might be talking to people that we don’t often talk to. Will the topic of headache or migraine come up?
It can be a sensitive topic. Maybe because it’s come up before, and it hasn’t been a good conversation. Or maybe it’s never come up at all, and you don’t want to mention it.
Maybe this year it should come up. Or maybe you should further the conversation. Headache disorders are a huge issue in our world, and so they should not be ignored.
Here are a few resources that might help you have a conversation. It could be sharing an article online, having a book on your coffee table, or printing something out to show a friend.
Let’s start with something pretty blunt – What I wish you knew… This is a compilation of what actual migraine/headache patients have written about what they wish family and friends knew about their condition.
Migraine facts: A few years ago I wrote a series of articles looking at migraine from three perspectives. Though a little dated, I would still recommend them as a good place to begin for someone who really wants to understand. Here they are: 1) What is Migraine? (the scientific story) 2) What is Migraine? (the Story of Symptoms)
Is it really important to talk about migraine? You bet. Here are the actual statistics: Migraine: A Worldwide Crisis?
This is another old one, but because it’s a little different, I’ll include it. It’s The Migraine Quiz!
Migraine at work: This is from The Migraine Trust, a page all about helping you manage migraine at work, and talk to employers. Targeting a UK audience, but with helpful ideas for anyone in the world.
There are two beautiful and amazing books that I would recommend for your coffee table. Migraine Art: The Migraine Experience from Within is scholarly but filled with migraine art and amazing facts. From a patient perspective, Migraine Expressions: A Creative Journey Through Life With Migraine. Buy them new or used – either way, worth every penny if you’d like something that people could flip through while they wait for you to bring the cookies from the kitchen.
There’s also a movie about migraine that you could watch, called Lily’s Mom. You can read the review here.
Finally, for something a little different, how about a game? For those who want to keep the conversation a little lighter, try out 14 Days, “a 2-player tabletop game about life with chronic pain”.
Long time visitors of this website might be aware of the very popular but sometimes hard to get migraine barometer. In this case, playing hard to get is not a good thing, but we’re hoping that we have a better supply line now.
I’ll point you below to the ample information that is already available regarding this barometer, but here’s the short story for newbies.
The barometer is actually a super-accurate electronic barometer designed for marine use. This is not your cheap store bought brand.
The barometer allows you to track changes in pressure, so that you can a) see what type of weather affects your migraine attacks and b) possibly take early preventative action to avoid or lessen the attack.
Fluorescent lights have been a bane of headache patients for a long time. Outdated workplaces that still rely primarily on fluorescent light are still out there, and you may be working in one.
Though many employers can’t afford to change the lighting right away, there is another solution – a simple filter that cover the tubes, or the whole panel at once.
The advantage is that these filters do not need to be replaced, they cost a lot less than replacing the lighting system, and they can even be used just in specific rooms (the ones you work in).
If you live in the United States, you have a chance to win four of these filters! Keep reading for more details.
So, you would like to win 4 filters? No problem. All you need to do is tell me where you would use your filters, and enter your information into the giveaway page before the end of November 5th 2017 (giveaway now closed). Only US residents may enter.